Japanese Encephalitis -- Conducting Survey, Analyzing Data and Publishing Reports
(A) Study-Objective: To update our understanding on status of victims of JE / AES in Purvanchal as on 2019 and compare it with previous APPL ’s four studies.
To make fresh studies on not less than 50 cases of victims of JE / AES in Purvanchal, within a time frame of about 1 1/2 months. The name and details of the victims shall be randomly chosen from the list of admitted patients from BRD Medical college, Gorakhpur in the last season of July-Dec 2018.
All basic parameters of the study shall be the same as in previous APPL ’s four studies, so a comparison can be made during this period of time (about 12 years).
Additional data shall be collected to find out change in the economic status of the Victims / their families and Government’s positive intervention, if any.
Analyze the collected data in 2019 and Compare the same with the previous data / studies to find the changes , if any
Recommendations out of the study.
To submit 3 hard-bound-copies and one soft-copy of the final report, within a time frame of another 21 days, after data collection is over.
To help present and defend the study, during the presentation and before the stake holders and the media.
All collected data and the reports shall be property of APPL-Trust.
It would be last report on JE/ AES and by APPL-Trust.
This fourth report is the follow-up of earlier studies. The objective of this study was to find out the current status and changes observed in the last 5 years or so with respect to almost all aspects of our earlier studies, on the ground level. It has broken many myths about the effect of proximity to water bodies, animals, role of effective nutrition, safe drinking water, etc.
In the current study:
APPL has been monitoring the target section of the 200 victims in three selected blocks of Gorakhpur District and 50 selected households in each selected block for the period of past four months.
A well informed, motivated and equipped expert team of APPL was involved in the studies who have very meticulously & scientifically designed the various parameters, scanned each and every aspect to arrive at the ground realities.
A comprehensive schedule has been filled to collect the primary information regarding present scenario in the vulnerable areas.
The detailed investigation and information collected from various sources are the ground for APPL’s report and recommendations, published on December 29, 2011 at Gorakhpur (U.P., India).
APPL has made the third (additional) study, further follow-up in the year 2009-2010, on the subject and the results were shared with concerned people during a meeting entitled: ’A Qualitative Study On The Status Of JE/AES Victims’ on December 28,2010 at Gorakhpur(UP).The aim of the study was to evaluate the efficacy and scope of government’s various initiatives at ground level in the most affected region of areas comprising the districts under the Gorakhpur and Basti commissionary (s), major obstacles faced by the victims in identification, characterization, decision making for transportation to available medical facilities, treatment, rehabilitation, role of water bodies, animals/pets, nutrition, safe drinking water, socio-economic background of victims etc.
APPL made the second (additional) study, as follow-up in the year 2008-2009, on the subject and the results were shared with concerned people during a meeting entitled: “Challenges, Opportunities & Developing new tools to fight Disability in children in Eastern U.P due to Poverty, Illiteracy, Malnutrition with special emphasis on Japanese Encephalitis"’ on November 21, 2008 at Gorakhpur (UP).
The main aim of the study was to evaluate:
The efficacy and scope of government’s various initiatives at ground level in the most affected region
The effects of higher level of pollutants in drinking water due to excess use of chemical fertilizers, changed food habits and nutrition values of various cereals consumed currently and in past (about 3 decades- since the JE disease is prevalent in eastern UP.
The efficacy and scope of government’s various initiatives in form of vaccination, fogging, supply of mosquito-nets etc, major obstacles faced by the victims in identification, characterization, decision making for transportation to available medical facilities, treatment, rehabilitation, role of water bodies, animals/pets, nutrition, safe drinking water, socio-economic background of victims etc.
The objective of this study is to investigate about conditions, facts and ground realities of the JE disabled in PURVANCHAL in general and in worst hit three districts of Gorakhpur, Maharajganj and Kushinagar, in particular.
A comprehensive schedule has been filled to collect the primary information regarding present mental, physical, economical and social status of the victims.
The surroundings, family atmosphere, the effect of the illness and disability on their family has been investigated in detail.
The study looks into the accessibility and quality of medical services during and after the illness in terms of services rendered, counseling and follow up. It was the motive to find out the awareness level of the victims, families and the community.
The study also aims to find out the reach and effectiveness of the present rehabilitation package announced by the Government , how much the rehabilitation package changed the victims’ life and what is still needed to be done? T
This study has an important objective; not to point out who was at wrong, but to highlight what was wrong and specially to focus on the needs of the disabled , the ground realities , the loop holes in the existing health system and the rehabilitation policy of the Government. It also includes to share the findings with the organizations working on the issue as well as with the concerned departments of the Center and State.
APPL also plans to adopt some of the worst affected cases and support them for their total revival.